Wednesday, December 31, 2014
Tuesday, December 30, 2014
We have a winter storm warning, it is 23 degrees and it feels like 8.
Finally it feels like winter!!!
There's nothing better for a lady who has been through chemo and is in surgical menopause. Stepping outside when it's freezing is the best remedy for hot flashes!
Monday, December 29, 2014
Cancer survivors will always worry about the cancer coming back.
I've actually been trying not to let those worries take over the last few weeks. I was sick at the beginning of December and a round of antibiotics didn't get rid of this crud. I've been coughing and blowing my nose for almost a month. I don't have a fever anymore, and other than some dizziness (that I'm blaming on cough medicine), the only symptoms I have left are this horrible cough from the congestion in my throat and a pain in my side/back from coughing.
What do we do? How do we handle being sick without thinking we are really sick? I know my white and red blood cell counts are low, so it stands to reason that my body is having a hard time getting well due to my compromised immune system. Tell that to my paranoid brain. I went to the doctor last week and they didn't see anything concerning on the chest x-ray. Tell that to my paranoid brain. I can't help but worry that this cough is the result of something else, something much worse than this sinus crud.
One of our KCA friends recently started chemo for the second time. She was having a lot of pain and found out she had a build-up of fluid in her chest, and the fluid was positive for cancer cells. BLAH. I hate that she is having to go through this, not even one year after finishing chemo the first time. I hate that something she was worried about turned into something she needed to be worried about. It's things like this that make me even more afraid.
Who wants to live in fear?
Sunday, December 28, 2014
Saturday, December 27, 2014
Friday, December 26, 2014
- On Christmas Eve we went to the cemetery to visit Granny (Hubby's mom) for her birthday and Christmas. On the way home, out of the blue, K says, "Hey! I didn't know I could cross my eyes with my eyes closed!" Out of the mouths of babes, I'm telling you.
- Tuesday night I had a bad dream. I don't usually remember my dreams, and I don't often have bad ones. In my dream I found out I had to go through chemo again. Every cancer patient's nightmare - hearing that the cancer has come back. I was devastated and my first thought, of course, was that I really, really didn't want to lose my hair again. I try not to let cancer rule my life any more than it has to, but I guess even in my subconscious the fear is never far away.
- I wear the same size mens pajamas as my son.
- I could buy my family a hundred Christmas presents and it never fails - there's always one more I wish I had bought. K bought her BFF a really cute toy (annoying, but very cute), and she really loved it and wanted it for herself, too. If she wasn't with me and I hadn't already gotten her so many things, I would have bought it. Sigh. I admit I have a problem.
- I am the queen of mommy guilt, so it's no surprise that I feel guilty for not getting the one major gift my kids ask for. Granted, J asked for something that costs $400 and K decided the day before Christmas Eve (when my shopping was done) what she really wanted (Barbie Dream House). Uh.... not happening on either count.
- We had McDonald's for Christmas Eve.
- The cashier at one of the stores in the mall told us that her BFF's name was Kelsie. That is the first time we've heard of someone spelling it the same way!
- The cold/flu/respiratory infection from hell is back. I am coughing and blowing my nose and so sick of feeling like this. A round of antibiotics, six days of steroids and countless doses of cough medicine and I'm still hacking away. That's just great for the pain in my side (a.k.a. pleurisy).
- From my lips to God's ears (or at least the pastor's ears)... last year my one complaint about the Christmas Eve candlelight service was that we only sang one Christmas song. This year we sang all Christmas songs except one (and that one is one that I like, so it's ok). We sang Joy To The World, O Come, O Come Emmanuel, Oh Come All Ye Faithful, Angels We Have Heard on High and Silent Night. That's what I'm talking about!
Thursday, December 25, 2014
Wednesday, December 24, 2014
2015 will be another busy one, with more (minor) surgery for Michelle, more work for Boyd, normal kid stuff and even a wedding! Justin and Meagan are getting married in the fall!
Our family has had its share of ups & downs, but as always we fill our home with love, laughter & faith. (And chocolate)
Merry Christmas from Boyd, Michelle, Jared & Kelsie!
Tuesday, December 23, 2014
Apparently spending the last three weeks coughing my fool head off has led to some irritation in the lining of my lungs. Nothing much to do for it other than take something for the pain and a prescription for steroids. I've been taking Ibuprofen 800, but even that only takes the edge off. Anytime I laugh or cough or sneeze, I feel like someone is stabbing me along my ribs.
Seems like the fun never ends around here.
Monday, December 22, 2014
Yesterday morning we woke up to find her reading Twas the Night Before Christmas to K's squinkies. This morning we found her here:
The main reason I'm not a fan, though, is that keeping Heart is on K's Christmas list. In fact, she tells Santa that it's what she wants more than anything else. And this girl has some serious ideas when it comes to asking for gifts: touch screen computer, Barbies, an iPhone, a puppy and/or a kitten. Heart must rate pretty darn high to be what she wants most.
I wonder how Santa will handle this particular request.
Sunday, December 21, 2014
Saturday, December 20, 2014
We went to a casino where we stayed up way too late (WAY too late!) and spent way too much money. Sometimes I wish I didn't love to gamble so much. But it's one of those things that you either love or hate, and Hubby and I both love it. For the two of us, though, it's like golf. When he's not doing well, Hubby does not enjoy either one. I have fun whether I'm winning or not (of course winning is more fun - both in gambling and golf!).
Our kids stayed with friends, and I'm so blessed to have this family in my life. Not only because they have kids my kids' ages and they all have fun, but because I know they are going to be in good hands. I never worry when they are with them, and more often than not, we have to drag them away. I'm thankful for K & D opening their home for the night to my kiddos, and I'm thankful for my kiddos being on their best behavior.
Despite what happened at the casino - lucky, lucky me.
Friday, December 19, 2014
Wednesday, December 17, 2014
Tell that to my body, though. At my appointment with Dr. H last week (3 month check up), my blood work was not very cooperative. My white blood cells have stayed relatively steady (low, but steady) since I finished chemo. My red blood cells and hemoglobin were low during chemo, but had slowly started to come back up. Before my reconstruction surgery in November, my hemoglobin was 12, which is the "normal" number for a woman my age. The day after surgery it was 8.1, which is where it is now - still - five weeks after surgery.
Dr H is concerned that I have unexplained bleeding from somewhere, or a bone marrow disorder that's preventing my body from replenishing the blood cells it needs. In my opinion, obviously the surgery can be blamed for the big drop in hemoglobin. I was under anesthesia for almost nine hours and I had four different surgical sites... I'm sure I lost quite a bit of blood. What we can't figure out is why my counts aren't coming back up, even a little bit. I've been sick for the last two weeks with respiratory crap, so I'm sure that's not helping.
The easiest (and least scary) explanation would be an iron deficiency - hence the trip to the chemo room. Dr H ordered an IV iron infusion in hopes of jump-starting my blood cell manufacturing. I waited almost an hour, and then the infusion took a little over an hour. Since I had my port removed during my last surgery, they had to give me an IV this time. She put it in at the side of my wrist (ouch) which was uncomfortable, and the IV itself burned. I could feel it going up through my arm the entire time. Have you ever seen an iron IV? It looks like motor oil. Lovely.
I've certainly been through worse things, and since I haven't been able to bounce back completely on my own, maybe it will help get my system going. I'm just sick of being sick. Being severely anemic is no fun. I'm SO exhausted. Just doing the dishes takes my breath away (and not in a good way!). I don't want blood draws or check-ups. I don't want surgery or infusions. I know it's nothing compared to what I have gone through already, but I'm tired of it all, and I just want to be ME.
(And not the new, grouchy, biting everyone's head off and complaining all the time me that has taken over my body. I want to be sweet, caring, thoughtful, patient me.)
One more thing - speaking of the infusion room.... while I wasn't thrilled with having to go back there, an iron infusion was a pretty minor thing to be there for. The whole time I kept thinking of my friend Lyn. She's one of my KCA crew and she's undergoing chemotherapy for the second time in two years because they found cancer in the fluid around her lungs. Please pray for her. She's a spunky antique store owner biker chick who needs help kicking cancer's ass a second time.
Tuesday, December 16, 2014
Sunday, December 14, 2014
Of course that's just Allyson, but I totally get it now.
My mom had her first chemo last week and the yuck factor has kicked in. She's not sick, just feeling yucky and not wanting to eat. Luckily her OCD daughter has kept notes from every single day since the start of chemo last year - what I felt like, what meds I took, what foods I could eat. I just sent her a list of some of the foods I ate most often. I hope it helps her. I had some extra padding to spare. Mom doesn't! She needs to eat, eat, eat.
On a side note, I think my antibiotics finally kicked in. I still don't feel great - I'm coughing a ton and out of breath at the slightest effort - but I don't feel "sick". Hallalujah!
Friday, December 12, 2014
Light and dark, good and bad, positive and negative.
I had a lousy afternoon yesterday. I mean really lousy. I was fighting tears before the kids even went to bed. The unknown is a scary thing, and trying to talk yourself down from the ledge when your mind is firmly rooted there....not an easy thing.
And then, after wiping my eyes and blowing my nose for the hundredth time (ok, maybe a slight exaggeration), I looked down from my perch on the couch and saw this sweetie setting up her Little People nativity set under the Christmas tree, with her trusty reindeer by her side.
To top it off, she was singing "Deck the Halls."
Thursday, December 11, 2014
Let me tell you, this is heaven after being sick all week. I'm still coughing my fool head off, my throat hurts and I'm fighting off a headache, but I haven't had a fever since Tuesday, so maybe I've started to turn the corner a little bit. Not in any part thanks to me. I guess I don't do "resting" well. (Thanks Mom) Yesterday I was supposed to stay on the couch all day, except for J's band concert (which was fantastic!). Ummm....I washed clothes, wrapped all of the gifts I have so far, cooked dinner and then we decorated the tree. Not much couch-sitting going on there.
Today I have an appointment with Dr. H. You know what that means. Waiting, waiting and more waiting. And tonight is K's first basketball game, which she's informed me she's NOT ready to play. This is her first year playing and she's feeling a little lost. She said she doesn't want to go out there in a game because she doesn't know what to do. I tried to give her a pep talk, that she's not the only one who hasn't played before and that she didn't know a thing about softball when she started and look at her now! I don't think it sunk in. Tonight should be interesting.
Wednesday, December 10, 2014
I look miserable, I feel miserable and I'm acting miserable.
I would like to formally apologize to my family, because I am taking all of my stress and miserable-ness out on them. They don't deserve it. These are the people who love me despite my being grouchy and bitchy and nagging them about everything. I want to shower them with love and all of the Christmas spirit I can muster.
Unfortunately, recovering from this surgery has been a long road, I still don't have my energy back, and now I'm sicker than sick. Coughing-aching-stuffy-head-fever-so-you-can-rest medicine isn't touching this crud. Also unfortunate is the fact that Hubby is sick, too...so not much sympathy from his direction.
I've managed to work ten hours (first time back to work in over a month), go to Office Depot, make two trips to the post office, go grocery shopping, take K to basketball practice, take J to train club, wash three loads of laundry and do some online Christmas shopping in the past two days. Today the only thing on my agenda is J's Christmas band concert. Hopefully I don't cough my way through it.
On a side note, my mom made it through her first chemotherapy treatment yesterday without incident. She texted me and said, "I am eating walnuts, drinking pure leaf tea and getting chemo. The bizarreness of it all just hit me." That's pretty much chemo in a nutshell.
No pun intended.
Tuesday, December 9, 2014
Monday, December 8, 2014
Sunday, December 7, 2014
I am a month out of surgery and this is what I have so far for this Christmas (seven days into December):
Saturday, December 6, 2014
I can think of better people to hang out with, thank you very much... starting with my very own Hubby happily snoozing away in the bed I recently returned to after sleeping in the recliner for a month. Is that my problem? I'm used to sleeping in Hubby's chair since surgery and not my comfy, warm, memory foam-covered bed? I've stopped taking all of my nighttime pills (all supplements, nothing necessary) in hopes of figuring out these restless legs. I even followed Facebook's advice and bought some tonic water. That stuff is pretty gross. And it didn't work. Maybe I didn't drink enough of it, but I'd rather chug Nyquil. My friend K suggested I add some gin. She may be on to something. Maybe that's why it didn't work...maybe it's the gin and not so much the tonic!
So...It's 1:24am. I've been back to bed twice, once after getting a cough drop and once after riding my bike for ten minutes (isn't that everyone's favorite middle of the night activity?) because I couldn't lay still. Maybe I'm on Australian time or something. Isn't it daytime there?
I have to be up in six hours for a softball tournament, followed by a Christmas party tomorrow night. At this rate I'm going to be comatose by lunchtime. I knew I should have "accidentally" taken those leg compression things from the hospital. I was pretty much stuck in that hospital bed for five straight days and never once did I have restless legs. Ever since I've been home, I have had them every single night, and sometimes during the day, and nothing, not even my prescription meds, gets rid of them.
Cancer, you suck.
On a positive, amazing, glorious note, my dad came home from rehab today.
Did you hear me?
MY DAD CAME HOME FROM REHAB TODAY!!!
Or I guess I should say yesterday, considering what time it is. After over a month in two different hospitals and almost three months at the rehab, he is back in his own home. He called me from his recliner and had his beloved cat Sammy on his lap.
My mom commented on my Facebook post and said if you don't believe in miracles, go talk to Herb. Seriously. I got a call on August 4th and the doctor told me it was a "precarious situation and I might want to make plans". It was touch and go for about a week. I didn't know if I was packing for a visit or a funeral. My dad had heart damage from a heart attack and a major stroke. He had eight different brain bleeds. He couldn't move his right leg, could barely move his right hand and couldn't talk. They couldn't get his blood pressure under control. He fell out of bed more than once. He refused to cooperate with his therapists.
If you had told me my dad would be walking, talking and even climbing the stairs to his living room before Christmas I would have laughed. Miracles do happen. And like I told him two months ago when I visited, he is a fighter. Thank God.